News

South Shields man with cystic fibrosis to swim Lakes challenge
Adam Ball, who lives with cystic fibrosis which affects his ability to breathe, will swim the length of 13 lakes in the Lake ...
Genetic medicine can leave people with rare mutations behind. But there’s new hope
People with diseases caused by rare mutations have fewer options and poorer prospects than other patients despite rapid ...
Pulmonology Advisor2h
Guidelines Developed to Improve Newborn Screening for Cystic Fibrosis
New guidelines for cystic fibrosis screening in newborns improve sensitivity, equity, and timeliness of diagnosis.
Cystic fibrosis champion and former district court judge leaves behind a legacy of 'living is giving'
Several people have been credited with uttering famous sayings linking the words “living” and “giving,” but Steve Pelican ...
University of Vermont6d
UVM Clinical Trial Leads to Better Treatment for Cystic Fibrosis Patients
People living with cystic fibrosis can now take a once-daily drug that will help them breathe easier all day long, thanks to ...
Health and Me on MSN14h
Living With A Rare Genetic Mutation: Advanced Cystic Fibrosis
Battling a rare mutation of cystic fibrosis, Emily Kramer-Golinkoff fights for her life — and for gene therapies that offer ...
WTKR5d
Womanless pageant raises awareness for cystic fibrosis
The Martina Natoli Lagman Foundation held its 4th annual womanless beauty pageant and comedy show, raising money for cystic ...
Northern Scot3d
Elgin venue staging Bodycombat challenge to help Moray youngster Zoey and others with cystic fibrosis
A ‘Bodycombat’ challenge is being held in Moray this weekend to help this baby girl and others like her. Zoey Moir from Elgin ...
The BMJ6d
Where are we in terms of curing—and treating—cystic fibrosis?
Sixty years ago cystic fibrosis was practically a death sentence, but the remarkable progress of science and medicine means that people with the condition can live into their 60s. What new health ...
University of Utah Health10d
Cystic Fibrosis Patient Thriving After Double Lung Transplant
She was diagnosed with cystic fibrosis – an inherited condition that causes mucus buildup in the lungs, and often leads to ...
Hutton Wandesley Stables hosts The Yorkshire Pop Up fashion and lifestyle event for Cystic Fibrosis Care
The Yorkshire Pop Up shopping event at Hutton Wandesley Estate will raise funds for a charity close to the hearts of founder ...