Despite its prevalence and impact, there is no CF-specific guidance for the assessment and management of pain. The Cystic Fibrosis Foundation assembled an expert panel of clinicians, researchers, ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

Caring for a child with CF is challenging in more than one way. My daughter’s struggles often bring up my own mental health obstacles, making it difficult to be fully present for her when she needs me ...

Living with cystic fibrosis demands a complex regimen of care and treatment. Across the U.S., managing this care involves navigating a maze of health insurance coverage and significant out-of-pocket ...

I was diagnosed with cystic fibrosis-related liver cirrhosis in 2004 at the age of 9. Growing up, my disease wasn’t something to be pitied or seen as a weakness. It was a strength. I had the mentality ...

When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...

Your legacy of adding tomorrows for everyone with CF. Thank you for your incredible support. By including a gift to the Cystic Fibrosis Foundation in your will, you are making your mark on the future ...

No matter how long you’ve navigated cystic fibrosis, how much money you make, or what type of health insurance you have, living with CF is expensive. But managing finances can be doable when you take ...

Making a legacy gift in your will or trust is one of the easiest and most popular ways to make a lasting impact for the Cystic Fibrosis Foundation. Once you have provided for your loved ones, we hope ...

Please fill out the form below to let us know your availability. A member of the team will respond shortly to schedule a meeting. I am a prospective donor with questions about your programs. I am a ...